After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to ...

Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of ...

While neither I nor anyone else in my family have CF, there are a lot of important people in my life who do, as I have had the privilege of providing care to adults with CF for over ten years. These ...

Dear Secretary Kennedy, Director Vought, Acting Director Ezell and Acting Commissioner Dudek: On behalf of the Cystic Fibrosis Foundation, we write to express our grave concern about the rapid and ...

Dear Senators Marshall, Kaine, Tillis, Murkowski, Markey, and Merkley: On behalf of the nearly 40,000 children and adults with cystic fibrosis in the United States, we write to express our support for ...

Dear Chairman Mina and Members of the Committee on Health and Social Services: The Cystic Fibrosis Foundation appreciates the opportunity to comment on HB 151. On behalf of the people with cystic ...

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When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental ...

For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...