News

ALS News Today2d
Aim this ALS Awareness Month is to amplify community voices
For ALS Awareness Month this year, advocates want to raise the profile of the neurodegenerative disease in support of care, ...
Family spreading awareness about rare disease one mile at a time
This Saturday, hundreds of people will show compassion for and bring hope to those who are facing challenges most will never ...
WENY News4d
Shady Strong Leads ALS Awareness Month Push to Help Twin Tiers Families Impacted by the Disease
ALS is a neurodegenerative disease that affects around 5,000 Americans each year, and Thursday, May 1, marks the start of ALS ...
News246d
This woman is walking from Joburg to Cape Town to raise awareness of husband's rare disease
Shaun struggles with Dercum's disease – a rare condition characterised by painful growths of fatty tissue called lipomas. Now, inspired by TikTok star Gump Suzuki, Nicole will walk from Johannesburg ...
WMUR27d
Plaistow woman raises awareness for rare disease through Boston Marathon
BOTH JULES AND HER SISTER JESS WERE DIAGNOSED WITH ADHD, TOO, A RARE DISEASE WITH LITTLE INFORMATION ... JAMIE IS SPREADING AWARENESS. BY PUSHING FOR CHANGES IN FRONT OF CONGRESS AND THE FDA ...
WFSB10d
Family spreading awareness about rare disease one mile at a time
JetBlue launched its inaugural flight from Bradley International Airport in Windsor Locks to John F. Kennedy International Airport in New York City on Thursday. Demonstrations were scheduled ...
Coventry Telegraph9d
Warning over dangerous disease you can catch walking in long grass between April and June
With May being Lyme Disease Awareness Month, the charity is urging the public to be vigilant for the tiny arachnids that may carry the disease. If left untreated, Lyme Disease can have severe ...
Fairfax Times17d
Raising awareness about rare diseases
He is also the founder of RareGen, a non-profit that advocates for people with rare genetic diseases. His work has won him a Princeton Prize in Race Relations. The work he is doing and the ...
fox17online4d
Love For Lily: Hope for PDCD fundraiser returns to raise awareness and hope for rare disease
In April 2024, Lily Cieslinski was diagnosed with Pyruvate Dehydrogenase Complex Deficiency (PDCD), a neurodegenerative disease impairing ... on a mission to raise awareness and funding to find ...