Treatment with Evrysdi (risdiplam) may modestly improve arm function for adults with spinal muscular atrophy (SMA), a new study indicates.

Columnist Connie Chandler is inspired by the Olympic athletes, who invite people all over the world to dream that anything is possible.

Children with SMA often struggle to get a good night's sleep, and their caregivers also report feeling sleep-deprived, a new ...

Early treatment helps with swallowing and eating for SMA kids, but new research is needed on the effects of disease-modifying ...

Guest writer Ronna Johnson feels privileged to support her son, Brandon, in living his best life, pursuing his goals, and ...

The blood creatinine-to-cystatin-c ratio may be a biomarker of Spinraza treatment response in children with SMA, a study in ...

Columnist Sherry Toh writes of her love for Disney's "Beauty and the Beast" and reimagines a production led by a person with a disability.

At first, columnist Connie Chandler wasn't sold on the idea of attending a global prom. But she was soon convinced it's a special night.

The strength of nerve electrical impulses in children with SMA can help predict their response to treatment with Spinraza, a study found.

Women with SMA can experience successful pregnancies and positive birth outcomes. Pregnancy in SMA involves risks uch as breathing challenges and preterm birth. Multidisciplinary team care, including ...

It’s been almost a year since I moved into my new house, and I’m still working to get everything the way I want and need it. I’ve always loved warm temperatures. As long as I stay hydrated, the warmth ...

Genetic testing for SMA can show uncertain results, creating dilemmas for families over whether to start early, costly treatment. A rapid zebrafish model test clarified the impact of genetic variants ...