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When people ask me how I know I have abscesses in my belly button, I don’t even have to explain it anymore — I just show them. I show them the many small holes that tell the story my body has been living with for far too long. Each opening is evidence of flare-ups that formed, drained, healed, and then reopened again. It’s not something you can fake, exaggerate, or misunderstand once you see it up close. Living with HS and PASH means learning your body in ways most people never have to. You reco
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Living with Hidradenitis Suppurativa means my body doesn’t limit itself to one place. Some days it’s my armpits. Some days it’s my belly button. Some days it’s both at the same time. It’s the wound care people don’t see. The bandage changes. The drainage. The pain. The constant checking to make sure everything is okay. HS isn’t just something I live with—it’s something I learn to navigate every single day. But every scar, every dressing, and every difficult moment reminds me that I’m still here.
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